The Cure and Action for Tay-Sachs (CATS) Foundation

The Cure and Action for Tay-Sachs (CATS) Foundation

The Cure & Action for Tay-Sachs (CATS) Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease.

The CATS Foundation’s main focus is supporting families affected by Tay-Sachs and Sandhoff whilst also raising awareness of the diseases. The charity provides a support network, respite trips and vital equipment so that a sufferers quality of life is as high as possible. The CATS Foundation also provides funding to the research team who are investigating a potential treatment for both Tay-Sachs and Sandhoff disease.


  • Date: January 15, 2014